I have not control of my body, I have not memory, and again I CAN'T HEAR YOU!! If my body Shakes please DO NOT try to stop it, just let it do it, it will stop!! And if by any chance I had a little incontinence do not laugh at me, I can't control it; If is not easy for you, neither for me trust me!! Living with #NEAD or any kind of seizures disorder, is not easy, but with support and love, it can be fought!!
I wake up every morning to fight the same demons that left me so tired the night before, and I think that, my darling, makes me a warrior!
So to all my family and friends, please be aware:
I have a chronic illness, don't be surprised...if I don't answer the phone or reply to messages straight away; if I cancel our plans, especially at the last minute; if I leave early from a social gathering or party; if I suddenly nee to lie down or rest; if it seems I'm not listening or interested(brain fog). I'm still me, but sometimes my illness prevents me from doing the same thing as before, Please don't give up on me.
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